Sunday, March 29, 2009
29 March- We are very sorry for the time in between updates. Caroline is up to 6 lbs 6.8 ounces and smiles more everyday. There are hints that the heart murmur may still be there but doctors aren't too concerned at this point. Her reflux has not improved and may even be worse which is making it difficult for her to finish feedings. They are changing the medicine she is on to see if that makes a difference. They tried to ween her off the oxygen support again this weekend but with no luck. It is now very likely she will be on oxygen support when she is discharged. While we want her to have the support she needs, Kel and I are a little nervous about the stresses of monitoring this when she comes home. Her hip/leg braces seem to be working but they will remain on for awhile longer. Her latest lung x-ray still shows the one lung will not fully deflate but there is no plan for corrective surgery at this point. Please keep praying as we are beginning to see light at the end of the tunnel.