Monday, March 2, 2009
2 March- Lots of prayers are needed for lots of different issues that our family has faced in the last week or so. It started late last week when Caroline showed signs of discomfort and even pain. There were also certain signs of reflux. After many tests they made the decision to take the added calories out of her food and to cut back on the amount of food they were giving her. Thankfully the discomfort slowly decreased but sadly so did Caroline's weight. For three days straight she either lost or stayed the same weight in a time when it is essential that she grow and develop. Other signs of reflux have continued along with other signs of struggles with her lungs and breathing. X-Rays have shown some over inflation in her right lung that is not fully deflating when she exhales. Doctors are hopeful that this will fix itself with time but if not it could be serious enough to require surgery. Her flow rate on the nasal cannula has been up since I wrote last but Caroline has still shown signs of desaturation in her oxygen levels. With the high flow doctors determined there was too much air building up in her abdomen so they've decided to set the oxygen rate to 100% instead of the 25% she's been averaging, but take the flow down to .01 liters rather than 4. As if these issues aren't enough to keep Kel and I's heads spinning, they have also detected a high level of bad bacteria in her intestines and have placed her on some antibiotics to help clear that up. For Kel and I the multitude of recent hurdles have brought on added stress and exhaustion. We love each other and our daughter so much but this situation has brought new challenges. While all of this may seem scary to everyone, there is comfort knowing that her doctors are still very pleased with her overall progress and are confident that many of these issues will be resolved. Please pray for our daughter and our family as a whole.